Cure SMA Canada was initiated under the name, “Families of SMA Canada” in August 2000 by a small group of caring Canadian parents who were driven to fund Canadian SMA research. In 2011, the organization evolved, became incorporated and grew. Its mission was restructured to include direct family support in addition to funding Canadian research projects. Over the years we have fostered a community of individuals and families with SMA supporting them in living full and vibrant lives.

Here you’ll find information about the disease and its symptoms, care options, and insights from experienced members of the SMA community. As a part of Together in SMA, we can help you to understand the current clinical guidelines and available options of care. Consulting with your healthcare provider will help to develop a care plan that works best for you and your family.

March of Dimes Canada is a leading national charity committed to championing equity, empowering ability, and creating real change that will help the more than six million people living with disabilities across the country unlock the richness of their lives.

We serve, connect, and empower people living with disabilities to participate fully in life — on their own terms. Our work is grounded in the voices of the people we serve, built on a foundation of service, and backed by a 70-year history of success.

Muscular Dystrophy Canada provides Programs and Services, Research and Advocacy to support people affected by neuromuscular disorders. Neuromuscular disorders are defined as health conditions that are caused by spelling changes in the genetic code (mutations) or changes in the autoimmune system that in turn impact muscles and/or the nerves that connect to muscles. Muscular dystrophies are a group of disorders and are one type of neuromuscular disorder. Other types of neuromuscular disorders also under MDC’s umbrella include myopathies, neuromuscular junction disorders, peripheral neuropathies and lower motor neuron disorders.

Starting in February of 2021 as a means for families with children facing rare diseases and/or disabilities to connect and share resources.

For more information on how the Family Program supports families, interested individuals can visit their Services page.